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Evaluation of respiratory function at 6 years of age in patients with cystic fibrosis with frequent pulmonary exacerbations in the first 2 years of life
Tabakçı, Satı Özkan; Cinel, Güzin; Uytun, Salih; Polat, Sanem Eryılmaz; Yalçın, Ebru; Kiper, Nural; Erdal, Meltem Akgül; Can, Demet (European Respiratory Soc Journals Ltd, 2023)Özet bilgisi yok. -
Factors associated with pulmonary function decline of patients in the cystic fibrosis registry of Turkey: A retrospective cohort study
Emiralioğlu, Nagehan; Çakır, Banu; Sertçelik, Ahmet; Yalçın, Ebru; Kiper, Nural; Şen, Velat; Altıntaş, Derya Ufuk; Can, Demet (John Wiley and Sons, 2024)Background: The decline in pulmonary function is a predictor of disease progression in patients with cystic fibrosis (CF). This study aimed to determine the decline rate of percent predicted forced expiratory volume in 1 ... -
Patients with cystic fibrosis who could not receive the CFTR modulator treatment: What did they lose in 1 year?
Uytun, Salih; Cinel, Güzin; Polat, Sanem Eryılmaz; Tabakçı, Satı Özkan; Kiper, Nural; Yalçın, Ebru; Tural, Dilber Ademhan; Can, Demet (Wiley, 2023)BackgroundCystic fibrosis (CF) is an autosomal recessive disorder caused by CF transmembrane conductance regulator (CFTR) genetic variants. CFTR modulators improve pulmonary function and reduce respiratory infections in ... -
The success of the cystic fibrosis registry of Turkey for improvement of patient care
Asfuroğlu, Pelin; Eyüboğlu, Tuğba Sişmanlar; Aslan, Ayşe Tana; Gürsoy, Tuğba Ramasli; Emiralioğlu, Nagehan; Yalçın, Ebru; Kiper, Nural; Can, Demet (Wiley, 2022)Background Cystic fibrosis (CF) registries play an essential role in improving disease outcomes of people with CF. This study aimed to evaluate the association of newly established CF registry system in Turkey on follow-up, ...